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Thursday, April 30, 2009

More than one Trisomy 18 baby?

A few weeks ago, I was asked to be one of the group owners for the private second and third trimester loss boards. One of the other group owners graciously asked me, and I accepted.

Lately, she's had to refer a couple of women to me who have had a baby diagnosed with Trisomy 18. I don't mind, because I really want to welcome them and keep them from feeling so alone with this diagnosis.

The one she referred me to tonight just received a diagnosis for the second time. That makes me so worried.

We were told Jenna's case was a fluke. Flukes can happen twice. Now, I just have more to be paranoid about. Even though it's more dangerous, the CVS is better and better, just so I can get rid of this paranoia.


JenJen said...

Wow, how sad for this poor woman. And, I'm sure your heart just stopped when you heard it was the second diagnosis, but what are the chances of having two babies with this diagnosis? We all know the cruelty of statistics, but try to remain positive.

I noticed you were a group owner now on the 2nd and 3rd trimester loss group! I was wondering how that all came about, but they chose a good woman to help women with babies with Trisomy 18 diagnosis, thats for sure!

Alicja said...

How sad for this poor woman and her family.

I just wanted to post to tell you it can all work out. I remember those days when every little thing would have me wondering if my baby would be okay. I spent the last 6 weeks of my pregnancy studying her 3D ultrasound pics thinking she had hydrops and that they missed it.

I had a CVS with my last pregnancy and I remember being sooo nervous that I would miscarry from it. When the doctor came in to perform it I told her I was very nervous and she asked "why?!" . I told her that I was afraid to miscarry and she literally laughed. If it makes you feel any better, she told me those stats include highly inexperienced and low-budget doctors/hospitals/clinics. She had been doing CVS tests for 16 years and said she never lost a healthy baby.

I know you're a ball of nerves right now and you just want this baby to be safe and healthy. But please try to leave it in God's hands and just know that it can and most likely will work out.